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Check and request access

Users can find out for which studies they have access to data from the platform by navigating to the Discovery Page and selecting “Data Availability" (#1), then "Available" (#2), then ”OK” (#3), as shown below. Note: users should log in before they try to filter for studies with access to make sure that they are maximizing studies for which they have data access.

Access_Data

If you also check the Request Access box, you will identify additional studies with data for which you can request access. (see our documentation about the Data Availability filter)

Access to individual Studies

You can also check access by clicking on a study in the Discovery Page (#1), then clicking on the Data tab in the study page (#2), as shown below.

Discovery_Study_Page

The Data tab will display access permissions in the Data Files section. If you have access, a green box will show “You have access to this study”.

Current (open-access) studies

Current open-access studies will be shown when navigating to the Discovery Page.
Users can download and/or export open-access study files after logging in. Currently, the HEAL Platform hosts the following studies. All are open-access except when noted.

Note, that different studies relate to different Data Resources.

Project number Study Name Data Resource
57b45d83d6c9e7e8693ccdfd Naloxone Overdose Prevention Laws PDAPS
10.3886/ICPSR34945.v3 National Mental Health Services Survey (N-MHSS) ICPSR
1U24AR076730-01 A synthetic dataset from the Back Pain Consortium (BACPAC) Research Program Data Integration, Algorithm Development and Operations Management Center HEAL
10.3886/ICPSR04256.v5 National Survey of Substance Abuse Treatment Services (N-SSATS) ICPSR
cdcwonder CDC Wide-ranging Online Data for Epidemiologic Research (CDC WONDER) Mortality Multiple Cause-of-Death Public Use Record HEAL
10.3886/ICPSR30122.v5 Treatment Episode Data Set: Discharges (TEDS-D) ICPSR
deaarcos1 Drug Enforcement Administration Controlled Substances Tracking (DEA ARCOS) HEAL
a) 1U2CDA050098-01_a JCOIN - Methodology and Advanced Analytics Resource Center: JCOIN
b) 1U2CDA050098-01_b a) JCOIN 026: Amerispeak Brief Stigma Survey JCOIN
b) The Opioid Environment Policy Scan JCOIN

Overview of access to Datasets and Studies

Users can visit the "Profile” page to view a list of studies they have access to under the “You have access to the following project(s)” section, as shown in the figure below.

Profile_Access

A user can view their study access in the Profile Page.

From here users can also view current API keys or create and download new keys. API keys are required for downloads which require use of the Gen3-client. More information in the chapter “Downloading Data Files”.

Profile_APIKey

API keys can be viewed, created, and downloaded on the Profile Page.

From here users can also view if they have access to projects or workspaces

  • /dictionary_page: You have access to the data dictionary.
  • /workspace: You have access to the workspace.
  • /programs/open: You have access to open-access projects.

Linking access to FAIR enabled repositories

The HEAL Platform securely exposes data stored on multiple HEAL-compliant FAIR repositories.

Users need to link their account to currently all FAIR repositories in order to:

  1. run Jupyter Notebooks that utilize data stored on various FAIR repositories.
  2. export data that are stored on FAIR repositories from the Discovery Page to the Workspaces.
  3. download data that are stored on FAIR repositories from the Discovery Page.

In order to link the account to the involved FAIR repositories, navigate to the Profile Page and link the account to all current login options by clicking on the "Refresh [..] Google Login" buttons as shown below.

workspace_login_other_commons

Linking access options on the Profile Page for data stored on FAIR enabled repositories.

Access needs to be renewed after 30 days, as indicated after "Status: expires in [..] days".

As a reminder, users will be prompted with a banner on the Workspace page and a pop-up window on the Discovery page.

workspace_login_other_commons_top_banner

Users are reminded on the Workspace page to link the account to all other FAIR enabled repositories on the Profile Page.

workspace_login_other_commons_discovery

Users are reminded on the Discovery page to link the account to all other FAIR enabled repositories.